Multidisciplinary Approaches to Vascular Anomalies Webinars

Moderators

Ann Kulungowski, MD, and Taizo Nakano, MD
Children's Hospital Colorado, Aurora, CO

Guest Presenters

• 6yo F who presented in first year of life with right lateral leg staining
• Imaging at 2 yr of age demonstrated marginal vein

Treatment Options

• Patient progressed to syncopal episodes while wearing compression, likely due to large size of marginal vein

• 35yo F presents to CHCO VAC 11/2018
• Purple stain to right lateral thigh, RLE overgrowth, blebbing to foot, right buttock, groin
• Evaluated at multiple facilities throughout lifetime and received multiple diagnoses
• Has undergone several surgical excisions of bothersome “hemangiomas”

Moderators

Ann Kulungowski, M.D., and Taizo Nakano, M.D.
Children's Hospital Colorado, Aurora, CO

Expert Guest Panelists

Case Summary

• Infants born with chest wall masses
• No antenatal diagnoses
• Referred for evaluation
• Initiated multiple rounds of sclerotherapy
  • Macrocystic component

Case Summary

• HPI: 2 yo with chronic refractory right face/neck mixed LM with episodic swelling triggered by infection compromising airway
• First surgical debulking
• Rapid development of additional micro- and macrocysts--additional sclerotherapy
• Adjuvant sirolimus oral therapy

Case Summary

• HPI: Term infant with right face/neck vascular malformation
• Prenatal MRI showed transparent cystic mass
• Postnatal MRI showed mixed mirocystic and macrocystic lymphatic malformation

Case Summary

• 3 mo female presents to clinic to discuss a "hemangioma" present at birth.
• Klippel-Trenaunay Syndrome
  • Capillary Venolymphatic Malformation

Case Summary

• 17 yo female referred with history of multiple craniofacial venous malformations.
• Noted blue discoloration since infancy on right lip and eyelid.
• S/p previous attempt at surgical resection.